Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
Identifieur interne : 004389 ( Main/Exploration ); précédent : 004388; suivant : 004390Design and process evaluation of an informative website tailored to breast cancer survivors’ and intimate partners’ post-treatment care needs
Auteurs : Evelyn Pauwels [Belgique] ; Elke Van Hoof [Belgique] ; Caroline Charlier [Belgique, Pays-Bas] ; Lilian Lechner [Pays-Bas] ; Ilse De Bourdeaudhuij [Belgique]Source :
- BMC Research Notes [ 1756-0500 ] ; 2012.
Abstract
On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website.
The development process included quantitative and qualitative assessments of survivors’ and partners’ care needs and preferences. Participants’ use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10–12 weeks 57 survivors and 28 partners were granted access to the website.
Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal.
The website reached only about half of survivors and partners, yet was mostly well-received
Url:
DOI: 10.1186/1756-0500-5-548
PubMed: 23034161
PubMed Central: 3583797
Affiliations:
- Belgique, Pays-Bas
- Province de Flandre-Orientale, Région de Bruxelles-Capitale, Région flamande
- Bruxelles, Gand
- Université de Gand
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Le document en format XML
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Flandre-Orientale</region></placeName></affiliation></author><author><name sortKey="Van Hoof, Elke" sort="Van Hoof, Elke" uniqKey="Van Hoof E" first="Elke" last="Van Hoof">Elke Van Hoof</name><affiliation wicri:level="3"><nlm:aff id="I2">Faculty of Psychological and Educational Sciences, Free University of Brussels, Brussels, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Faculty of Psychological and Educational Sciences, Free University of Brussels, Brussels</wicri:regionArea><placeName><settlement type="city">Bruxelles</settlement><region nuts="2">Région de Bruxelles-Capitale</region></placeName></affiliation><affiliation wicri:level="3"><nlm:aff id="I3">Belgian Cancer Centre, Scientific Institute of Public Health, Brussels, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Belgian Cancer Centre, Scientific Institute of Public Health, Brussels</wicri:regionArea><placeName><settlement type="city">Bruxelles</settlement><region 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Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Faculty of Medicine and Health Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent</wicri:regionArea><orgName type="university">Université de Gand</orgName><placeName><settlement type="city">Gand</settlement><region>Région flamande</region><region type="district" nuts="2">Province de Flandre-Orientale</region></placeName></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">23034161</idno><idno type="pmc">3583797</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3583797</idno><idno type="RBID">PMC:3583797</idno><idno type="doi">10.1186/1756-0500-5-548</idno><date when="2012">2012</date><idno type="wicri:Area/Pmc/Corpus">002A85</idno><idno type="wicri:explorRef" wicri:stream="Pmc" 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Pauwels</name><affiliation wicri:level="4"><nlm:aff id="I1">Faculty of Medicine and Health Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Faculty of Medicine and Health Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent</wicri:regionArea><orgName type="university">Université de Gand</orgName><placeName><settlement type="city">Gand</settlement><region>Région flamande</region><region type="district" nuts="2">Province de Flandre-Orientale</region></placeName></affiliation></author><author><name sortKey="Van Hoof, Elke" sort="Van Hoof, Elke" uniqKey="Van Hoof E" first="Elke" last="Van Hoof">Elke Van Hoof</name><affiliation wicri:level="3"><nlm:aff id="I2">Faculty of Psychological and Educational Sciences, Free University of Brussels, Brussels, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Faculty of Psychological and Educational Sciences, Free University of Brussels, Brussels</wicri:regionArea><placeName><settlement type="city">Bruxelles</settlement><region nuts="2">Région de Bruxelles-Capitale</region></placeName></affiliation><affiliation wicri:level="3"><nlm:aff id="I3">Belgian Cancer Centre, Scientific Institute of Public Health, Brussels, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Belgian Cancer Centre, Scientific Institute of Public Health, Brussels</wicri:regionArea><placeName><settlement type="city">Bruxelles</settlement><region nuts="2">Région de Bruxelles-Capitale</region></placeName></affiliation></author><author><name sortKey="Charlier, Caroline" sort="Charlier, Caroline" uniqKey="Charlier C" first="Caroline" last="Charlier">Caroline Charlier</name><affiliation wicri:level="4"><nlm:aff id="I1">Faculty of Medicine and Health Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Faculty of Medicine and Health Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent</wicri:regionArea><orgName type="university">Université de Gand</orgName><placeName><settlement type="city">Gand</settlement><region>Région flamande</region><region type="district" nuts="2">Province de Flandre-Orientale</region></placeName></affiliation><affiliation wicri:level="1"><nlm:aff id="I4">Faculty of Psychology, Open University of the Netherlands, Heerlen, the Netherlands</nlm:aff><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Faculty of Psychology, Open University of the Netherlands, Heerlen</wicri:regionArea><wicri:noRegion>Heerlen</wicri:noRegion></affiliation></author><author><name sortKey="Lechner, Lilian" sort="Lechner, Lilian" uniqKey="Lechner L" first="Lilian" last="Lechner">Lilian Lechner</name><affiliation wicri:level="1"><nlm:aff id="I4">Faculty of Psychology, Open University of the Netherlands, Heerlen, the Netherlands</nlm:aff><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Faculty of Psychology, Open University of the Netherlands, Heerlen</wicri:regionArea><wicri:noRegion>Heerlen</wicri:noRegion></affiliation></author><author><name sortKey="De Bourdeaudhuij, Ilse" sort="De Bourdeaudhuij, Ilse" uniqKey="De Bourdeaudhuij I" first="Ilse" last="De Bourdeaudhuij">Ilse De Bourdeaudhuij</name><affiliation wicri:level="4"><nlm:aff id="I1">Faculty of Medicine and Health Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent, Belgium</nlm:aff><country xml:lang="fr">Belgique</country><wicri:regionArea>Faculty of Medicine and Health Sciences, Department of Movement and Sport Sciences, Ghent University, Watersportlaan 2, 9000, Gent</wicri:regionArea><orgName type="university">Université de Gand</orgName><placeName><settlement type="city">Gand</settlement><region>Région flamande</region><region type="district" nuts="2">Province de Flandre-Orientale</region></placeName></affiliation></author></analytic><series><title level="j">BMC Research Notes</title><idno type="eISSN">1756-0500</idno><imprint><date when="2012">2012</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Background</title><p>On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website.</p></sec><sec><title>Methods</title><p>The development process included quantitative and qualitative assessments of survivors’ and partners’ care needs and preferences. Participants’ use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10–12 weeks 57 survivors and 28 partners were granted access to the website.</p></sec><sec><title>Results</title><p>Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal.</p></sec><sec><title>Conclusions</title><p>The website reached only about half of survivors and partners, yet was mostly well-received<italic>.</italic> Besides other ways of providing information and support, a website containing clear-cut and tailored information could be a useful tool in post-treatment care provision.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Allen, Jd" uniqKey="Allen J">JD Allen</name></author><author><name sortKey="Savadatti, S" uniqKey="Savadatti S">S Savadatti</name></author><author><name sortKey="Levy, Ag" uniqKey="Levy A">AG Levy</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Costanzo, Es" uniqKey="Costanzo E">ES Costanzo</name></author><author><name sortKey="Lutgendorf, Sk" uniqKey="Lutgendorf S">SK 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sortKey="Hawkins, R" uniqKey="Hawkins R">R Hawkins</name></author><author><name sortKey="Arora, N" uniqKey="Arora N">N Arora</name></author><author><name sortKey="Mctavish, F" uniqKey="Mctavish F">F McTavish</name></author><author><name sortKey="Pingree, S" uniqKey="Pingree S">S Pingree</name></author><author><name sortKey="Gustafson, Dh" uniqKey="Gustafson D">DH Gustafson</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Lee, Sy" uniqKey="Lee S">SY Lee</name></author><author><name sortKey="Hawkins, R" uniqKey="Hawkins R">R Hawkins</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Brug, J" uniqKey="Brug J">J Brug</name></author><author><name sortKey="Steenhuis, I" uniqKey="Steenhuis I">I Steenhuis</name></author><author><name sortKey="Van Assema, P" uniqKey="Van Assema P">P van Assema</name></author><author><name sortKey="De Vries, H" uniqKey="De Vries H">H De Vries</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Brug, J" uniqKey="Brug J">J Brug</name></author><author><name sortKey="Glanz, K" uniqKey="Glanz K">K Glanz</name></author><author><name sortKey="Van Assema, P" uniqKey="Van Assema P">P van Assema</name></author><author><name sortKey="Kok, G" uniqKey="Kok G">G Kok</name></author><author><name sortKey="Van Breukelen, Gj" uniqKey="Van Breukelen G">GJ van Breukelen</name></author></analytic></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Belgique</li><li>Pays-Bas</li></country><region><li>Province de Flandre-Orientale</li><li>Région de Bruxelles-Capitale</li><li>Région flamande</li></region><settlement><li>Bruxelles</li><li>Gand</li></settlement><orgName><li>Université de Gand</li></orgName></list><tree><country name="Belgique"><region name="Région flamande"><name sortKey="Pauwels, Evelyn" sort="Pauwels, Evelyn" uniqKey="Pauwels E" first="Evelyn" last="Pauwels">Evelyn Pauwels</name></region><name sortKey="Charlier, Caroline" sort="Charlier, Caroline" uniqKey="Charlier C" first="Caroline" last="Charlier">Caroline Charlier</name><name sortKey="De Bourdeaudhuij, Ilse" sort="De Bourdeaudhuij, Ilse" uniqKey="De Bourdeaudhuij I" first="Ilse" last="De Bourdeaudhuij">Ilse De Bourdeaudhuij</name><name sortKey="Van Hoof, Elke" sort="Van Hoof, Elke" uniqKey="Van Hoof E" first="Elke" last="Van Hoof">Elke Van Hoof</name><name sortKey="Van Hoof, Elke" sort="Van Hoof, Elke" uniqKey="Van Hoof E" first="Elke" last="Van Hoof">Elke Van Hoof</name></country><country name="Pays-Bas"><noRegion><name sortKey="Charlier, Caroline" sort="Charlier, Caroline" uniqKey="Charlier C" first="Caroline" last="Charlier">Caroline Charlier</name></noRegion><name sortKey="Lechner, Lilian" sort="Lechner, Lilian" uniqKey="Lechner L" first="Lilian" last="Lechner">Lilian Lechner</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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